Saturday, September 1, 2012

Neonatal Doc Scariness

I figure since I'm awake and breakfast is still on its way, I could update on the scariness that was our conversation with the NICU docs yesterday.

It's overwhelming when they come in anyways because you KNOW it's because you're at risk of delivering early.  And of course they came in at a time when we still didn't know if the boys were going to be delivered at exactly 24 weeks or not, so I'm still an emotional freakin wreck!

Needless to say they started by asking us what our concerns and questions were.  Okay, seriously?  I'm a scared pregnant lady who has waiting over THREE years to have a baby...that seems obvious...survivability.

Wellllll who knew the decisions you have to make for your 24 week old baby if its born?  This hospital will let the parents choose whether or not to pull out all the stops between 24 and 25 weeks.  In other words, we could choose not to have the doctors try any kind of extraordinary measures (i.e. resuscitate them).  Um, excuse me?  I don't know, but I'm not 100% sure that any momma would be able to make that decision lightly.  At what point do you give up?  Obviously I want my boys to have a good quality of life and not live in a wheelchair if we can help it.  I don't want them to be blind or deaf or mentally retarded, no, but if I said no, I don't want you to resuscitate them, then how would I know that that was even going to happen.  Being born at 24 weeks, they have a 75% chance of having some sort of lifetime issue.  That's really scary, yes, but the scarier number is that with my boys being twins, they only have a 40% chance of survival at 24 weeks.  Very scary numbers...

BUT the good news is that I'm not delivering them at 24 weeks, so every hour and every day counts.  My goal is 26 weeks for now...then if we make it there, 28...two weeks at a time.  But ultimately I know that every day they stay in there is better. :)  So let's hope that these boys will wait until at LEAST October to make their appearance!  Keep the positive thoughts coming, please!

2 comments:

  1. Hang in there momma! I spent 4 weeks on hospital bed rest with my twins for PIH (preg induced hypertension)-basically high-ish bp. I had protein in my urine too, but actually being on bed rest 100% of the time made the amt of protein go down. Bed rest helps so much! I made it 36w, praying you can keep those boys in a lot longer!

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    1. Thankfully no hospital bed rest for me yet...not even home bed rest...the hypertension issues seem to have resolved. The maternal/fetal medicine doc this AM even admitted that they may not be able to figure out what's wrong and it may be just stretching of the ligaments that were affected by my surgery for my gallbladder, but they don't know. That's okay as long as maybe I can keep these babies in my belly for a lot longer!!

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