I've started to learn that the best time to blog is the 2-3 AM pumps I'm waking up for. Mind you, that's if I actually wake up. I've been setting my alarm to wake up for them...I don't always wake up. Or, if I do, I hit the snooze a couple of times before turning it off completely and then wake up a little bit later and say, oh crap... :-S Something tells me even if I brought Sammy home tomorrow, this time of day would still be the best for blogging. Lol!
Nothing really new has happened. We're still maintaining the status quo. However, I'm not going to complain. His dobutamine is turned off now and his dopamine has been from 6-10 mcg/k/hr, titrating based on what he needs. I'm hoping he can come off of it soon...it forces his heart rate a bit high. But ultimately, it's going okay. His bowel perforation appears to actually be pretty much healed because he pooped again yesterday! And then the surgeon came and stuck a swab up the poor boys butt and he pooped some more. Good signs. He'll still have his drain in until Thurs/Fri or until it falls out and they may run a dye test just to be sure that there's no more hole. Then he can start feeds again! That means maybe he can gain weight a bit faster. This past week, his weight has fluctuated a bit, but as they've stopped giving him replacement fluids (i.e. replaced his urine output with some combination of fluid), he has continued to gain some significant weight. We were up to 690 grams yesterday! I am hoping he didn't lose any at all over the past day. It'd be great to see him actually getting bigger.
We spoke with Dr. Suresh briefly yesterday who's on this weekend and asked about the PDA ligation...he told us we would talk to Dr. Edwards about that this week. He mentioned our two options are going to be to wait for Sammy to get better or do the surgery (obvious choices, but figured I'd outline them). It will be interesting to hear the good and bad of each option. I'd really like to focus on one thing at a time for Sammy. If his bowels are healed, I'd like to see him gain a bit of weight and get a bit stronger before the surgery. But, in my opinion, it's a balancing act of how long they can maintain that and medically maintain his blood pressure until the surgery is the only way things are going to get better. It scares me to do the surgery because of collapsing his lung to do it when he's had such problems with his lungs...we'll see. All we can do is get all of the information and make the most informed decision for Sammy's well being.
Sammy is 3 weeks old today! :) I can't believe it!! It's crazy that that much time has already gone by...I have no idea where fall has gone. One day the leaves are green and it's 80 degrees out, the next we're lucky if it's 65 and the leaves are all turning. I love this time of year usually, so here's hoping I can take some time and enjoy it. Maybe I'll make my way up to the orchard up the road and get some apples for apple crisp and cider donuts. I've been spending time at home in the evenings now. We didn't get back until late Saturday night because I held Sammy for about an hour while they worked on changing out his isolette, but Cam and I still spent some quiet time together. And last night we got home at around 7 and just relaxed. It was nice. I did get some picking up done...minor amount, but some. It's nice to have the time and energy to get stuff done at home. It seems like forever since I've had that. Maybe it's me nesting. :) Another month or so and Sammy's room will be finished so I can really get to work. Hehe!
Cam and I talked last night about getting tattoos in honor of our boys. I've always wanted a small tattoo anyways and after everything with Andrew, I feel like I owe it to him and Sammy to make sure that I have a memory of them with me all the time. Plus I want one! We have an impression of Andrew's foot that I figured I'd try to get a rubbing of to use and then Amy (one of Sammy's primaries) got some great ones of his foot a couple weeks ago that I'll use. I'm going to do their small little footprints with their names and birth date (one of each of their feet) on the inside of my right ankle. Now I just have to brave up to do it...and find a good tattoo artist in the area... Cam also thinks he'll get one on his upper shoulder of a cool version of the boys' zodiac with their birth date. I like it a lot. And it will be good therapy for us and something for us to do together. :) A great way to honor Andrew's short fight and the continuing one that Sammy will have. I'm so proud of my sons and love them to the moon and back...
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