Sunday, September 23, 2012

Home Sweet Bittersweet Home

After three weeks of not sleeping in my own bed, not having my own kitchen, and not having my own bathroom with wonderful shower, I decided coming home would be a good idea.  I timed it at a time when Camden is home at night...just in case I have a freak out.  So far I'm up pumping and just had the best four hours of sleep I've had in almost a month.  I think it's going pretty good.  I of course am still freaking out that something could happen to Sammy and I'd need to get to him and I'm about an hour away, but so far he seems to be doing okay.

On Thursday, he pooped! That's a good sign his bowels are working again.  But we haven't had any since and our ostomy bag has slowed down leaking, so here's crossing our fingers.  However, we're not sure what's happening after last night.  The nurses wanted to get his isolette switched out...which of course meant he had to be moved anyways, so why not allow me to hold him while they do, right? So I got to cuddle my baby for a bit.  Problem is that all the moving must have irritated his little tummy because he vomitted yellow stomach bile. :(  It scared both me and Cam enough to have the nurse come look and she used his OG tube to pull even more out of his stomach. :(  Poor baby.  That was enough for me to be officially scared, so I really didn't hold him for as long as I would have liked.  Plus, Cam was anxious to get home (we're talking it was already 8:30 at night anyways) and nervous about us holding him anyways because the last time was when the bowel perforation happened in the first place. I just couldn't relax holding him knowing his poor little tummy was acting up.  The nurse said a lot of times it can happen with a bowel perforation and they'd keep an eye on it.  :-S  So now I have no idea how things are going after thinking we had a great day and everything.  The nurse did confirm that he would have had that in his stomach even if we hadn't held him.  The only thing holding him did was maybe all the movement jostled him enough to vomit it up.  That made me feel a little bit better, but not 100%.  I'm still a worried Momma.

Other than that, he's still on the jet ventilator.  Dr. Edwards wanted to move him to the conventional ventilator on Friday and they attempted, but Sammy wasn't ready.  Hopefully soon.  We'll see.  They did catch yesterday morning that the top of his right lung was partially collapsed, so they worked with the ventilator yesterday to try to recover that and I'm sure we'll hear of another X-ray when we go in tomorrow morning (or call).  Here's hoping they've recuperated it!  And that there's nothing else going on in his abdomen.

He did gain some weight...but then he lost it again.  He's still hovering around his birth weight.  I'm really hoping all the playing with his TPN (IV nutrition) to get it maximized will help.  Then if his bowel heals and he can have breast milk again, hopefully that will help, too.  Only time will tell.  As of yesterday morning, he weighed in at about 1lb 5oz, an ounce under his birth weight. :-S  Beats the almost 3 oz under his birth weight that he was hovering at for a bit!

Yes, being home is great, but it means planning a bit more when I leave to spend time with Sammy.  I will see how this new routine goes!!

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